Tuesday 13 October 2015

Never have the initials P.E. struck so much fear into mankind since schooldays

Tuesday 13th October

Following on from the tomfoolery of my post on the Nando's Facebook page earlier this evening (if you missed it, click here >>> https://goo.gl/ZwnA2U ) there's actually quite a bit of serious news to come out of today. Amanda actually had a restless night here took her ages to get to sleep due to various physical and psychological disturbances.

I spoke to the nursing team today who were dealing with Amanda during her neurological surgery who had Amanda's case notes from her hospitalisation with her pulmonary embolisms (P.E.'s) this weekend just gone.

- Both of Amanda's P.E's were large. Very large actually. While I'm going to stop short of saying life threatening...well,...actually, head over to the NHS website to see that they are indeed life-threatening http://www.nhs.uk/…/pulmonary-embol…/Pages/Introduction.aspx Would love to hear from any of you guys out there who have your own experiences with these little brutes.

- As the treatment for P.E.'s is expected to be at least for 4 months, this means that the Cyber Knife surgery that Amanda was expected to have towards the end of October will now be put back. While we have no date on when this is likely to be, it's likely to be next year now. Whilst not ideal, this is unavoidable as Amanda needs to recover from the blood clot treatment.

- We're back in a period of uncertainty due to the Cyber Knife cancellation. With the onset of the last diagnosis of cancer so quickly, what's to stop it from happening again? We'll be seeing the oncology consultant next week for further clarification on this and to find out maybe if a further scan will take place to take into account the delay with the Cyber Knife treatment.

- Somewhat predictably, due to the ongoing treatment for a very serious clot(s), the medical opinion is that Amanda shouldn't attempt to fly anywhere, so recuperation in Spain via plane is not possible. We may be able to look into driving, but it's dependent on a lot of factors, which we will consider.

So we're back in a period of uncertainty. Without the Cyber Knife procedure, there's going to be that uncertainty for the time being on if or when the secondary breast cancer on the brain will return. Next Wednesday's appointment suddenly becomes quite important all of a sudden as we need the reassurance that we'll be looked after. One of the things throughout the last two years is that no matter how mundane or insignificant a sickness symptom arises, sometimes you feel like you're being over sensitive in contacting the health care professions - a little like the 'boy who cried wolf'. However, without doing this on three times so far, I've probably saved Amanda's life.

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